8th Annual "Shoot for Cystinosis"

Conceived in 2016, the goal of the “Shoot for Cystinosis” was to bring awareness of the plight of children suffering from this horrible disease & to raise money for research, since most research money comes from private donations & fundraisers.

The inaugural event was on behalf of a 9 year old St. Catharines girl, the only known case in the Niagara Region, living with this rare disease. Since then she has grown into a lovely young lady who doesn’t want to be defined by her disease. We have renamed the event to the “Shoot for Cystinosis” to highlight the disease & help all the young children afflicted by this disease.

Cystinosis is a rare, incurable metabolic disease in which the amino acid cystine gets into the cells, but has no transporter out. Because of the defect in transportation, the cell crystallizes causing early cell death. It slowly destroys the organs in the body including the kidneys, liver, eyes, muscles & the brain. Cystinosis is a disease so rare, that it affects only 2,000 children worldwide.

In the 7 years we have been hosting this event we have raised over $138,000 for Cystinosis Research & 100% of all money raised has been donated to “The Canadian Cystinosis Research Foundation” to fund ongoing research for a cure. Will you join us & help us eradicate this horrible disease? On July 12th from 9-5, in conjunction with the Decew Gun Club,  we are holding the 8th annual "Shoot for Cystinosis." 

For the low price of $25 each person gets a practice target, a competition target, lunch and a raffle ticket. Guests will also be able to fire different kinds of firearms for an additional fee. The shoot is open to everyone in the community (adults & children alike) & no shooting experience or license is necessary. We have many great volunteers manning the firing line, providing a very professional & safe shooting line. There is no charge for spectators. Come and take part in the "ginormus" penny sale, hourly 50-50 draws, and ongoing raffles all day long.

Any and all donations are appreciated no matter how big or how small. If you would like to sponsor us with a prize or donation or volunteer please reach out.

www.shoootforcystinosis.com
https://www.facebook.com/groups/3248897048676913
https://www.instagram.com/shootforcystinosis/